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Bioethics Lab Genomic Family History

Background Videos

Ryan Hanlon, MSW, PhD, National Council for Adoption

Vice President of Education, Research and Constituent Services

“Genetic Testing and Adoption”

 

Amy McGuire, JD, PhD, Baylor College of Medicine

lead, Cold Spring Harbor Banbury Working Group on Forensic Genealogy

“Relative Matching and Privacy”

 

Lisa Gibson: President, Families with Children from China

“Adoptee Perspectives on Genetic Testing”

 

Dana Johnson, MD, University of Minnesota

Founder of the first International Adoption Clinic

“Medical Needs for International Adoptees”

 

Lainie Ross, MD, PhD, University of Chicago

Lead Author, American Academy of Pediatrics / American College of Medical Genetics

and Genomics Report on Genetic Testing of Children

“A Pediatrician’s Perspective on AAP/ACMG recommendations”

 

Lori Orlando, MD, MHS, MCI, Duke University

lead, “MeTree” Family Health History based risk assessment tool

“Role of Family Health History in Health Screening and Maintenance”

 

Aaron Goldenberg, PhD, MPH, Case Western Reserve University School of Medicine

Director, National Newborn Screening Clearinghouse; Member, Ethics and Legal

Work Group of the Newborn Screening Translational Research Network.

“Newborn Screening: Coverage, Gaps and Genetic Testing Needs”

 

Anya Prince, JD, MPP, University of Iowa College of Law

“Status of Insurance for Inherited Disease Testing”